So, we've been without internet at the hospital for a few days. I'm hoping they'll have it fixed by tomorrow. I've been having internet withdrawals and finally went back to Kathy's to get my fix. Sorry if the lack of posts worried anyone, everything is pretty much holding steady here.
Drew had a great day yesterday and I did write an entire post about it and will try to recover it later. Basically he rode his bike all around the corridors and pretty much acted like his normal self. Ava had a total meltdown at the hospital and almost broke my heart when it was time for her to go back to Grandma's. She was sobbing hysterically and saying "miss mommy daddy drew." Then Drew's dressing change last night was the worst one we've had yet and he was more than just irritated, he was fully crying with tears and everything. My heart was broken twice in two hours and I had myself a good cry that night. Then Drew woke up on & off all night having nightmares and saying "ow, no!" and then woke up with pains in his legs and feet. It wasn't a very restful night.
Today, he was not acting like himself. After he woke up his face looked swollen, and he hasn't been peeing very much, even though he is still on two diuretics. He was grumpy all day and after playing in the playroom for a short while he asked to go back to his bed. He felt warm to me and they took his temp and he did have a fever. His oxygen was a little lower than it has been too. I am worred about a respiratory thing, which would just be our luck. They did more blood cultures and so far it looks like no infection. Our second roommate since we've been on the floor went home today. We liked them and Miles (20) had an impresive recovery, going home today on post-op day 3!
That's all for now, please pray for strength and endurance and comfort for Drew. I am mentally, emotionally, and spiritually exhausted and it looks like we've got at least another week.