Woo Hoo! We're out of there!
Drew was acting really cranky this morning and I was afraid he was trying to get sick just when we were about to leave! Luckily he seems fine now and hopefully he was just as tired of being in the hospital as I was. We had to have them change the dressing on his PICC line before we left and that was pretty traumatic as usual. Lots of tears and screaming, but we kept telling him it was the last thing he had to do before he could go to the hotel. Except, then his line came out a little bit so they wanted to do an x-ray to make sure it was still in the right spot. I swear it took forever! The last hour was the slowest! I finally went out to go for a walk and of course, the second I left they discharged us! So now we're all at the hotel and I'm just trying to get as organized as possible. We are waiting for the Home Pharmacy people to come deliver our supplies and then teach us how to give the antibiotics.
Drew gets his IV linezolid at 7 am, 3 pm and 11 pm and his IV Ceftriaxone is at 9 pm. His oral medications, Lasix and Aldactone are at 8 am and 8 pm. If we have any free time in between we can visit some local attractions and we are to "use our discretion" about where to go. We are still suppose to be careful about crowded places because of the risk of infection. When I asked about our radius of how far we are allowed to go the attending doctor said "we have a don't ask don't tell policy, just don't tell me where you're going." So I won't!
Our schedule for next week looks like this:
Monday, June 30th: 12:30 cardiology clinic for them to check the incision
Thursday, July 3: 7:30 CT, then an x-ray, 12:30 appointment with cardiology, then hopefully removal of the PICC line and freedom to go home!
We've met some wonderful people at the hospital and I will continue to think of them even though we won't be seeing them everyday anymore. Since we have to stay local I plan to do a little shopping and bring some joy to those families who are still in the hospital or still waiting at the RMH. I'm near tears just thinking of the love and encouragement we've received since we've been gone. Thank you everyone! We couldn't have done it without you!