I remember hearing Ryan's story at a fundraiser we attended in February. Ryan had a heart attack on the basketball court when he was 13. He was dead for four minutes before paramedics arrived and were able to get his heartbeat going again. (A brief aside~this illustrates the need for EVERY school to have an AED on campus, but sadly, most don't.) Ryan's defect was undiagnosed until his heart attack and the damage that it caused meant that he had to give up sports, and he is a sports fanatic. But, he is such an amazing kid that he doesn't have a bad attitude about that at all. Instead he spends his summers volunteering at all three camps for Camp Taylor and he is great with the kids! Our kids loved him and wanted to say hi to him, hug him, sit on his lap, or play with him every time they saw him. He sat with us at meal times and helped watch and entertain the kids while the adults got to play bunco one night (Dan and I were the big winners!).
I don't want to end on a sad note, the talk with Dr. Desai was very informative and interesting. And he even gave everyone a personalized diagram of their child's heart, that's something we didn't have yet! After that discussion we ended the weekend together with everyone sharing what Camp Taylor meant to them. For us it was a lot of fun making great memories, meeting other families and celebrating our heart hero!