I took the night shift last night and gave Dan his first night of sleep at the hotel with Ava. They had a good night and so did we. It's not so bad sleeping here, if you don't mind lots of interruptions. We have a sweet 17 year-old roommate, but I think he's moving down to the PICU tonight and we're getting another roommate.
This morning the surgical PA came in to do the dressing change. She thinks it looks really good and we are no longer packing it. In fact, she said we only have to do it once a day now. Yay! So I tried to convince her that they should let us leave. He's only on two IV antibiotics, everything else is oral and the dressing change is just putting a clean piece of gauze over the wound. I'm pretty sure I can manage that. Even if they make us stay locally and I have to bring him in every day, that would be better than staying here. So I mentioned this to the surgical PA, the NP, our nurse today and our social worker. It sounds like most people think we could work something out, but we have to hear what Dr. Hanley thinks. Here are the options I've heard:
- discharge us to RMH or hotel. They would have to change one of the IV antibiotics to oral and then teach me how to give the other one. We would have periodic appointments for them to check the wound.
- discharge us to RMH or hotel, and have us go to the "day hospital" for IV therapy. I guess it's like an outpatient clinic or something.
- discharge us home, probably with one IV antibiotic and one oral, and do follow up care with Dr. Mainwaring at Sutter.
- keep us here forever and ever.
Today our pastor, Kevin, came to visit us. We had a fun secret excursion (I dressed him in street clothes so they wouldn't try to stop us from leaving) to the duck pond/fountain, ate some yummy tri-tip sandwiches and had a nice visit. Then we had some time in the play room, watched another dinosaur movie, rode bikes and saw the trains. The more I see Drew just acting like a normal kid, the more convinced I am we need to get out of here!