Snuggle SoftThey said we will continue both antibiotics and check the wound every 7 days. I said, if what you mean by every 7 days is, we wait 7 days then you tell us we can go home, that sounds good. Otherwise not so much. So we're officially hanging out with this plan until next Sunday. Which will make a whole month since surgery. Ugh.
Good news includes:
- the surgeons don't believe the bone is infected, which was a concern of the immunologist
- Drew got taken off of oxygen today twice, but is currently getting blow by because he's hanging around the low 90s
- Ava is feeling much better
- we all survived another day
15 comments:
That's right, Andrea, you all did survive another day and you did it together as a family! I'm so proud of you all and if you're not home by next weekend I might just have to come back up again because I need to rub your back, hold my grandkids, and give you breaks again.
Love, Mom
You are a survivor. I hope you are able to break away this weekend and come enjoy some much much needed R&R with me and the girls. I can personally guarantee margarita's Hang in there Himmels
Love KRistina
Good news, great family. I know it is taking SO much longer than anyone expected, but things are continuing to improve, even if slowly. My heart aches as my mind thinks about how you must feel being away from home for so long, and being without your family as one. I don't have the answer, and I don't know who does, but you are a very strong family that can survive this. A little help from margaritas might make things a little more bearable!
ah hahaha, i'm snuggle soft! i'm tony danza! i kinda miss that guy in a perverse way; he really provided a surreal element to it all. love yer guts!
Yay for good news! Boo for a longer stay! Yay for surviving another day! Still praying...
Amy
I thank God that he is giving you the strength to continue to go through each day, and SURVIVE it. :) You are all just so strong, and I'm amazed by your strength. Give Drew some extra loves today for all of us that don't live close. God bless you all today.
Taria
Hang in there kiddo! You're all doing great!
PS o2 blow by is much better than cannulas! Right on Drew!
What a awesome post! The part about the infection not being at the bone brings tears to my eyes! I couldn't have asked for better news!
Love to you!
Valerie
i'm finished with school as of next week. if you need a break, or a friend, or a margarita, say the word and i'll be in my car before you can finish the sentence. i love you! and your family!
on another note, infections in bones sounds kinda (a lot) yucky. i'm REALLY glad that drew doesn't have that. :)
hang in there guys. can i just say that i'm very proud of you for standing up for your concerns and voicing your gut motherly instinct. there are so many areas you guys are outshining as parents, but fighting for your kid's health with those big smiles? so.proud.
btw, i just read that the rate of adverse events in hospitalized kiddos is higher than previously thought, but that 17.8% could have been caught more quickly and 16.8% could have been handled better. The article said that 97% caused only mild, temporary issues, but that 22% were preventable. [[most common classes were opioid analgesics + antibiotics]]
You're obviously in good hands, but if you're feeling in any way uneasy, keep shouting it out, don't take push back, and quote the research published in Pediatrics (vol.121, no.4).
I don't know you or your family, but I do know what it's like to spend every spare moment at the hospital with a loved one. I pray that soon you will all be able to spend more time at home, and leave the anxiety of uncertain health behind.
r
you guys are in our prayers daily. your doing such a wonderful job and seeing drews smile reflects the love you share with him. he is such a superstar! wyndi and izzy
Good job for finding good things about your day! I am so thankful that Drew does not have a bone infection--that sounds pretty ugly! So 7 more days, huh? At least that gives us more time to get your carpets cleaned! Drew is so cute there in his bed. I can't wait until he's healed enough so I can give him a big squeeze.
I know you feel so alone here in this strange hospital with new doctors and nurses every day, but you when you get home you will be showered with love and support that you could never have imagined. I hope that day comes sooner than expected.
Love,
Christa
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