Post-op Day 17

What started out as a pretty awful morning is turning out to be a decent afternoon.

I got a late start on getting to the hospital and when I got here I couldn't find Dan and Drew. His bed was in a different room, but all our stuff was in our old room and they were nowhere to be found. The nurse told me that they were working on his room and we'd be able to put his bed back in there later, but we could leave our things. About five minutes later she came in to say they wanted Drew for an echo. So I checked every floor, including the roof and couldn't find them. I finally found them in the playroom (I had checked there first, we must have missed each other on the elevators).

We went for the echo and Drew had an awful time. He screamed and cried and got so agitated. It was very difficult and I had to take a break. Which is unusual for me, so you know it was bad. I had a bit of a breakdown and talked to child life to see if there was anything they could do. I asked them to be present for the next dressing change and then requested that the doctors give Drew ativan and fentanyl for dressing changes. They also called a child psychiatrist to come and evaluate him. I guess if you cry enough they'll do what you ask. Because we had the surgical fellow do the dressing change and the child life specialist was present too. The ativan worked like magic and he did SO much better through that procedure. Afterwards he went to the playroom and once it closed he came back to our room but has been playing candy land and hi ho cherry-o. He seems like his old self right now.

He does still have a fever and now a runny nose. So far his temp hasn't been very high and his chest x-ray still looks good, so I'm hoping it's just some little cold or something that will go away quickly. We are currently on day 8 of a 10 day course of antibiotics and are hoping his wound will heal quickly so we don't have to stay much past Wednesday. Only time will tell...