OK, so it's only day 12, but it sure feels longer than that!
We've had a great day today! Drew is acting pretty much like himself. Praise God! He's talking, joking, laughing, playing, and even eating. He went to preschool from 10-12, then the playroom from 2:30 to 4. Now we're playing in his room, but he's sitting on the bench next to me, not in his bed. He had PT at the "gym" and played basketball and got most of his balls in the hoop. She is going to try and see about finding him a tricycle to ride, although I'm not sure how that will work with his tubes.
Drew didn't eat very much breakfast, but he did eat all his pasta for lunch, plus a quarter of Dan's chicken sandwich. Just now he asked for carrot sticks with ranch (what?) and I went on a hunt to find some.
Guess how much the chest tubes put out last night? 35 and 27 mls each. Yay! They are waiting another day to make sure the output stays low, but they might take them out tomorrow. They are saying that he's chylous, but so far we are just trying to restrict his fluid intake a little (it's not very hard) and avoid super fatty foods, so I guess I'll have to hide the bacon I ordered him for breakfast tomorrow.
The one piece of bad news is that there is a third spot of infection on Drew's incision today. I took this gross picture of it when they were changing his dressing.
Disgusting huh? You should have seen the dressing change though. The surgical fellow actually opened his incision up while he was laying in his bed and I was standing right next to him. With a scalpel. She could have warned me. Blood was dripping down his side and got on his bed. If I had known they were going to do that I would have made sure he got a sedative. At least he got his fentanyl before, they were almost going to do it on only tylenol. But, my kid is amazing. After they literally cut his chest open, cleaned it with a swab, and packed gauze into the open wound, he got up and went straight to the playroom. I don't think any adults I know would do that, let alone a 4-year old. He's awesome.
Some other pictures and videos to make up for the gross one.
Drew figured out how to work his bed and plug in his leads today
Playing with the train