The doctors came by and decided not to extubate yet. I am really disappointed. It's so hard to wait. But when the tube comes out I want it to stay out, and it really has only been 36 hours or so since he's come back from surgery. The reason they are waiting is that his x-rays are showing some fluid in or around his lungs. There is some concern about reperfusion because since his surgery his lungs are getting more blood flow than they've ever seen and his body needs to adjust to this anatomy. They plan to do another x-ray around 6 tonight and see what it looks like. Then they'll decide if they want to extubate tonight or tomorrow. In the meantime they are starting some feeds through his ng tube, so at least he won't be hungry when he does wake up.
Some verses I've been meditating on:
2 Corinthians 4:18
So we don't look at the troubles we can see now; rather we fix our gaze on things that cannot be seen. For the things we see now will soon be gone, but the things we cannot see will last forever.
2 Corinthians 13:9
My grace is all you need. My power works best in weakness.
Romans 8:18
Yet what we suffer now is nothing compared to the glory He will reveal to us later.
Psalm 27:14
Wait patiently for the Lord. Be brave and courageous. Yes wait patiently for the Lord.
Drew
Drew is a happy 7-year-old who loves his family, his friends, and everything Star Wars! He was born with a CHD, specifically interrupted aortic arch, VSD, hypoplastic aortic root and DiGeorge Syndrome. He has had three open-heart surgeries, the most recent was in May 2008 at Stanford. He is so strong and brave and we are very proud of him.
Ava
Ava is a spirited 5-year-old girl. She loves her family, friends and climbing, jumping and dancing. She brings us a lot of joy and a lot of drama! She is heart healthy. We love to see all the adventures she has!
This is how Drew's heart is now!
One and a half ventricle repair 1) VSD closed with a patch 2) Conduit from right ventricle to pulmonary artery . Drew still has the SVC connected to the PA in the upper left. Thank you Dr. Hanley and Dr. Mainwaring!
12 comments:
Sorry that he isn't ready to get the tube out...but, like you said...it's better to take it out when he's ready so it can STAY OUT!!!
He does look so peaceful sleeping there. Is there a window beside him?? That looks like the same bed space we get everytime we go there!
Hope you ALL have a good day!
and hope you don't hear beeps in your head all day!
Sending our love and prayers,
Kathy
your church family is thinking and praying for you this morning. lots of love and hugs, Kacie
Thank you for all of your updates. Jeff and I are praying for Drew and your family. You are an inspiration Andrea!
Amanda
Great scripture! It encouraged me too! Glad to hear that the doctor's are being "careful" in their care for Drew, although I'm sure it's disappointing to an extent that his tube isn't coming out yet. I skipped church today to work on some of my consulting (just trying to explain my "mid-church" post - hahahaha).
Amy
Hi!
Miss you guys! We're glad you are getting good rest at night at Grandma Kathy's house! Give Drew a kiss for us-he is so brave and is doing such a great job! So are you two!! love you, Jamie, Matt, Ashley, Jodie and Caren
I am sorry to hear about having to wait on the extabation. I couldn't believe how loud it was in there while watching your video. Listening to you explain what all the lines are and where they are on his little body put both Freddie and I in tears. I know this can't be easy but you guys are amazing! We are constantly thinking of you and praying. We have the blog page opened on both computers and refresh them everytime we walk by or when we come home after being gone! We love you all!!
Be brave and courageous. So funny you wrote that. Eric preached on that today, but from Joshua. He must have said that phrase 2 dozen times!
Pete
Andrea- I just want to let you know...I was working in the preschool room this morning and Drew's friends had a precious time of prayer for him. It was so sweet to hear their little hearts lifting up their friend to the Lord. They miss him a lot and the boys were arguing after about who was going to visit Drew FIRST and bring him the BEST present. We are all praying. It is a cool thing that by partnering with you in your time of trial, we are all being pulled closer to the Lord!
We can't wait to hear more...
Kristen
Eben says,"I love you and I miss you Drew. I hope you get better soon!" Ella loves you too!
Andrea,
I love your passages. Those are really going to help you right now. Your doing such a great job!
With love,
Jen
Andrea and Family,
Drew is on the minds and hearts of everyone I talk too. Your updates are humbeling and a constant reminder of the importance of life, to keep God at the center of everything..
From a mamma to a mamma, I am sending you a hug. I know you need it...
Love,Liz Golla
Andrea
Thank you for taking the time to post the scriptures that are helping you today. They are a great reminder. We love you and we are continuing to pray
Love
Kristina Tony and Tommy
that makes sense about his body needing to adjust to the new operating system, i didn't even think about that! and you're right, even though it's been the loooongest 36 hours, that's still very close to such a big surgery. that's a good perspective on wanting the tube to *stay* out once they've extubated him, too. a bit more waiting for a better outcome. whew. hang in there, loves.
Post a Comment