We arrived at our hotel at 3:15 and lugged all our stuff inside. Dan and Ava are taking a nap and Drew is watching a movie. Our hotel has free wi-fi so here I am on the internet. We've got to figure out a plan for dinner and then we just relax until tomorrow morning.
We have to be at Stanford at 7:30 tomorrow morning for pre-op. This will involve an EKG, echo, chest x-ray and blood work. Then we will meet one of the physician assistants, a member of the anesthesia team and a child life specialist. We also made an appointment for a consultation with Dr. Hanley, since we still haven't actually met him yet. The Packet says to plan for at least 6-8 hours and to bring toys, books and snacks. There is also a tour of the CVICU we are going to try to make at 1 pm. Drew will not be admitted to the hospital tomorrow. We will find out what time his surgery is scheduled and when to be back on Friday.
Pray it all goes smoothly and I will update you all tomorrow.
Drew
Drew is a happy 7-year-old who loves his family, his friends, and everything Star Wars! He was born with a CHD, specifically interrupted aortic arch, VSD, hypoplastic aortic root and DiGeorge Syndrome. He has had three open-heart surgeries, the most recent was in May 2008 at Stanford. He is so strong and brave and we are very proud of him.
Ava
Ava is a spirited 5-year-old girl. She loves her family, friends and climbing, jumping and dancing. She brings us a lot of joy and a lot of drama! She is heart healthy. We love to see all the adventures she has!
This is how Drew's heart is now!
One and a half ventricle repair 1) VSD closed with a patch 2) Conduit from right ventricle to pulmonary artery . Drew still has the SVC connected to the PA in the upper left. Thank you Dr. Hanley and Dr. Mainwaring!
22 comments:
i'm glad you got to the "hop-tel" safe and sound. try to relax tonight!
Glad you made it safe and sound! We are praying for a restful night and an uneventful smooth day tomorrow!!
I've been thinking about your family all day! Glad you're settled for the night. Praying for an uneventful day tomorrow!
Amy
Glad you made it safely. We are praying for all the tests and such tomorrow. See you soon!!
Thinking of you guys. Hope all goes smoothly tomorrow!
Prayers are headed your way!!!
(FYI...Sean is the BEST at drawing blood...ask for him!)
Tell everyone the Vegas Rollers said "HELLO!"
I HOPE you get to meet Dr. Hanley...he'll set your mind at ease!
Lots of love,
Kathy
Glad to hear you made it there safe. I'm keeping you guys in my prayers.
More prayers coming from the Quayle Covey. Bibby and Bandit miss you too. They keep staring in the window at me.
Praying for you guys!
hi friends. thinking of you guys and praying for you. thankful the updates. just saw the slide show - thanks for posting it! (: hugs to all of you, Kacie
It's early Thursday morning... I'm praying for your family. See you tomorrow.
Eric
I have been praying for you Himmel's. I hope my prayers worked for a peaceful drive to Palo Alto.
Ella and I have been praying for you in the wee hours of this morning too. Yes, I am posting at 5:30 AM. She went back to sleep, I'm just wide awake.
Love,
Jen
I'll be sending good thoughts your way over the next couple of days.
Dina
I woke up thinking about you guys today. I'm glad you had a safe trip there. I'll say some prayers for a quick and easy pre-op day today! xoxoxo
Even more prayers and thoughts from your friends in Trinity.
Amy
Thinking of you this AM. I hope you got some sleep last night. Will look forward to a update later.......
Praying hard!
No stranger to Stanford myself, I recommend the hoagie in the little cafe over in the Cancer Center building. It's delicious, and the bread is nice and tough without hurting your mouth. But I digress....like everyone else, we are praying for you guys.
Todd
I'm thinking of you all this morning. And praying everything goes smoothly. God Bless!
Went to sleep praying... woke up with the big day of pre-op on my mind. Hope it is going smoothly. We love you guys, and wish we could be there to have the big "Friends" breakfast like we did during his first surgery. Wes says he'd even do the five shots of syrup again to keep your minds in a happy place!
God is Good God is Good God is Good!!! I am praying for uneventfulness smooth sailing and peace
Kristina
I'm keeping you all very close to my heart in my prayer, and know that God will give you peace as you learn more about the hospital and staff. May you all feel lifted up today.
In Him,
Taria
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