After rounds this morning the only orders were to have Drew get up and move around more. So pretty much everything else is the same. He still has 2 chest tubes, an IV and his pacer wires. Still on .25 liters of oxygen. Still holding all vital signs stable. He is now on only tylenol and motrin for pain and I think he's doing pretty good with that. He is also getting lasix orally and simethicone for gas. It crossed my mind that he may not need any medication when we go home. How amazing would that be?
Drew walked for the first time today. He had a lot of help from mommy & daddy, the PT and the nurse. It is quite the ordeal to get him in and out of bed. Can't lift him under the arms for six weeks, so we have to scoop him in sort of a chair sit. Then someone has to be in charge of the chest tubes, making sure they don't catch on anything and that his feet don't get tangled, and someone has to be in charge of the oxygen, for the same reasons. He only walked from his bed to the door and he did not like it! He had a single, sad tear running down his face.
I think this may be the hardest part for me. Making him do things that are uncomfortable, maybe even painful, but doing it because it will make him better. It is good for his lungs to be moving around and also for drainage for the chest tubes, which we'd like to get rid of. But he cries and shouts (quietly) and kicks his little legs. Poor guy.
He's been eating better, but still not normally yet. After his short walk and lunch he took a two hour nap, and so did we. Unfortunately he slept through the hours the play room was open, but we will try and make it tomorrow. We still don't have a roommate yet! It has been wonderfully peaceful in our room. Drew keeps asking if it's raining because of the bubbling sound from the vacuum for his chest tubes. It is a relaxing sound.
After he woke up we got him up and into the wagon. We went for a walk on the roof where Drew saw a helicopter and a couple of airplanes and finally got a little fresh air and sunshine. We met another nice family up there who's 5 year-old son was diagnosed with leukemia three weeks ago. Drew and Cameron had a good little walk out there. Then we took him to see the train on the first floor. That may be our motivation to get him standing and walking. He stood up to watch it for about 10 seconds, then sat upright on my lap for a good twenty minutes. This is great progress for him!