When I got to the hospital this morning Drew just didn't look good to me. Yesterday when he was free of the fever he was looking and acting normal, but today he just looked sicker. He spent most of the morning laying in bed watching movies. He slept most of the afternoon. When he woke up around 5:30 he looked like he was feeling a little better and he ate all the macaroni and cheese that our friends brought him for dinner. He's been coughing more now, but still not as much as usual when he has pneumonia. The fever came back last night around 4 am and again this afternoon. Both times in the 102 range. There was talk of possibly sending us home today, but with the fevers coming back they wanted Drew to stay another night. If he spikes another fever tonight they are going to want to do more blood cultures. The ones they did last night haven't shown anything yet, so that is a good sign. His oxygen levels are still normal, so we still don't really know what the problem is.
I came home around 6:30 so I could spend a little time with Ava before bed. I know she is too young to understand, but I just feel horrible leaving her so last minute with no mommy or daddy for days at a time. I had a lot of fun playing with her before bed and she helped to lift my spirits a little.
Speaking of which, I did pretty well today except for a brief moment when I went to the gift shop to get Drew a present. I let my mind run away with me and got really scared. I was scared he had some serious infection that might kill him. I wondered if we'd be able to take him home. I know that seems extreme after just a fever, but it happens. Things can change so quickly for these kids. So for other heart moms reading this, do you do that? And if you don't do that, how do you avoid it? I let myself be sad for a bit then got myself together and went back to his room. And when I got there his fever had gone down, thank God.
So Dan's spending the night with him again tonight and I'll relieve him in the morning. We haven't had a roommate all day so hopefully they will both be able to get some good sleep tonight.