Our family's story of living with a CHD and choosing to live life to the fullest
Friday, September 7, 2007
Drew's Heart Story
A friend of mine who started a new support group for parents of children with heart defects asked if we would share Drew's story on their website. If you'd like to see Drew's story you can find it here.
at was a lovely story! Evan and Drew are only a few weeks apart in age. We go to San Fran for our heart stuff too but we go to California Pacific Medical Center.
I've heard about the bits and pieces since Drew was born, but never all together like this. I cried while I read this. I've known for almost 20 years what an amazing person you are. I know what an incredible person Dan is. Reading this though is truly inspiring. I'm proud and honored to have you both as friends. Thank you for sharing this.
Drew is a happy 7-year-old who loves his family, his friends, and everything Star Wars! He was born with a CHD, specifically interrupted aortic arch, VSD, hypoplastic aortic root and DiGeorge Syndrome. He has had three open-heart surgeries, the most recent was in May 2008 at Stanford. He is so strong and brave and we are very proud of him.
Ava
Ava is a spirited 5-year-old girl. She loves her family, friends and climbing, jumping and dancing. She brings us a lot of joy and a lot of drama! She is heart healthy. We love to see all the adventures she has!
This is how Drew's heart is now!
One and a half ventricle repair 1) VSD closed with a patch 2) Conduit from right ventricle to pulmonary artery . Drew still has the SVC connected to the PA in the upper left. Thank you Dr. Hanley and Dr. Mainwaring!
4 comments:
at was a lovely story! Evan and Drew are only a few weeks apart in age. We go to San Fran for our heart stuff too but we go to California Pacific Medical Center.
Would you stop making me cry Andrea? :) Amy
If you want to chat a bit more feel free to email me. It is a bit awkward talking through blogs.
I've heard about the bits and pieces since Drew was born, but never all together like this. I cried while I read this. I've known for almost 20 years what an amazing person you are. I know what an incredible person Dan is. Reading this though is truly inspiring. I'm proud and honored to have you both as friends. Thank you for sharing this.
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