Dr. Hanley called on Friday while I was driving down to So Cal. Dan spoke with him and relayed this information.
1. He thinks it is clear that we should NOT have the Fontan.
2. He would recommend a 1 1/2 ventricle repair, which means he would leave the SVC attached to the pulmonary artery (the Glenn), place a patch near the VSD to make Drew's heart septated, and also attach an external conduit from the right ventricle to the pulmonary artery to restore a normal pattern of bloodflow.
3. It is not clear to him why Drew's surgeon did a Norwood in the beginning and he never would have gone that route.
It's good news that there is agreement between the two surgeons on what type of surgery should be done now. That makes it a little easier. The hard part is hearing that Drew never should have had a Norwood to begin with, and it might have been possible for him to have only one surgery. It sounds like both surgeons are saying now that that's been done there is no going back, and that is heartbreaking. I put another call in to Dr. Hanley to ask him why he wouldn't have done a Norwood, because it might make a difference in whether or not we trust his orignal surgeon to do the surgery this time. I am waiting for a call back. So for right now we are considering both UCSF and Stanford and need to do a little more digging before we have all the info we need. I would still like to talk to our surgeon at UCSF personally and get his opinion on things.