Our family's story of living with a CHD and choosing to live life to the fullest
Tuesday, February 5, 2008
Heart Day
Today was Heart Day at Drew's preschool. I ordered this shirt for him to wear when we make our yearly delivery to the UC Davis Children's Hospital. But it seemed appropriate for him to wear it today.
Drew is a happy 7-year-old who loves his family, his friends, and everything Star Wars! He was born with a CHD, specifically interrupted aortic arch, VSD, hypoplastic aortic root and DiGeorge Syndrome. He has had three open-heart surgeries, the most recent was in May 2008 at Stanford. He is so strong and brave and we are very proud of him.
Ava
Ava is a spirited 5-year-old girl. She loves her family, friends and climbing, jumping and dancing. She brings us a lot of joy and a lot of drama! She is heart healthy. We love to see all the adventures she has!
This is how Drew's heart is now!
One and a half ventricle repair 1) VSD closed with a patch 2) Conduit from right ventricle to pulmonary artery . Drew still has the SVC connected to the PA in the upper left. Thank you Dr. Hanley and Dr. Mainwaring!
4 comments:
He's such a cutie pie!!!!!
That is perfect!! Too cute!
That little guy just keeps getting more handsome all the time!
How appropriate! Great shirt!
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