Our family's story of living with a CHD and choosing to live life to the fullest
Thursday, February 21, 2008
Field Trip to the Fire Station
Today Drew's preschool class had a field trip to the fire station. When we got to school he told me he didn't want to wear a fire hat and he didn't want to ride a firetruck. That made me question how he was going to do once we got there. I know he's scared of loud noises and so I told him that they wouldn't turn on the sirens without telling us first. I also told him it's good to try new things, even if it's a little scary, because we might like them. He did so well, I was really proud of him for trying new things! He sat on the fire engine and enjoyed the tour of the station. They also watched a fire safety video and listened to how firefighters help people who are sick. When they brought out the stethoscope and blood pressure cuff he kept looking at me and saying "that's just like me!" He didn't want to be near the fireman when he was dressed in all his gear and his mask, but he wasn't the only one. When they left the kids all got fire hats and coloring books to take home. Drew ended up having a really fun day!
Drew is a happy 7-year-old who loves his family, his friends, and everything Star Wars! He was born with a CHD, specifically interrupted aortic arch, VSD, hypoplastic aortic root and DiGeorge Syndrome. He has had three open-heart surgeries, the most recent was in May 2008 at Stanford. He is so strong and brave and we are very proud of him.
Ava is a spirited 5-year-old girl. She loves her family, friends and climbing, jumping and dancing. She brings us a lot of joy and a lot of drama! She is heart healthy. We love to see all the adventures she has!
This is how Drew's heart is now!
One and a half ventricle repair 1) VSD closed with a patch 2) Conduit from right ventricle to pulmonary artery . Drew still has the SVC connected to the PA in the upper left. Thank you Dr. Hanley and Dr. Mainwaring!
In the dark times, the eye begins to see. The dark times in life are not our enemy. Dark times empty the world of things that would otherwise distract us from seeing the important things. Enter the darkness with confidence.