Our family's story of living with a CHD and choosing to live life to the fullest
Tuesday, August 12, 2008
Two videos for your viewing pleasure. The first one is Drew singing his little heart out to the theme song from Veggie Tales. After we taped Drew doing it Ava wanted me to take her video singing. However, she quickly changed her mind. Enjoy!
Drew is a happy 7-year-old who loves his family, his friends, and everything Star Wars! He was born with a CHD, specifically interrupted aortic arch, VSD, hypoplastic aortic root and DiGeorge Syndrome. He has had three open-heart surgeries, the most recent was in May 2008 at Stanford. He is so strong and brave and we are very proud of him.
Ava is a spirited 5-year-old girl. She loves her family, friends and climbing, jumping and dancing. She brings us a lot of joy and a lot of drama! She is heart healthy. We love to see all the adventures she has!
This is how Drew's heart is now!
One and a half ventricle repair 1) VSD closed with a patch 2) Conduit from right ventricle to pulmonary artery . Drew still has the SVC connected to the PA in the upper left. Thank you Dr. Hanley and Dr. Mainwaring!
In the dark times, the eye begins to see. The dark times in life are not our enemy. Dark times empty the world of things that would otherwise distract us from seeing the important things. Enter the darkness with confidence.