I'm not sure if I've written about Faith on my blog before, but she had a special place in my heart. She and Drew had very similar beginnings. They were born about a month apart, both with interrupted aortic arch and 22q. They both had their first surgeries at UCSF and actually had a bit of an overlap there. Through the years her mom, Shelly, and I kept in touch about what was going on with our kids. We attended 22q conferences, support group meetings and sent Christmas cards and prayer requests.
Faith had the same surgery that Drew had, a one and a half ventricle repair, at UCD on March 31st. She spent the past two months in the hospital fighting for her life. Unfortunately after a strong and courageous fight, Faith passed away on Monday afternoon, in the arms of her mother who had been waiting two months to hold her again. I can only imagine the depth of the pain that Faith's parents are feeling. When I heard the news I sobbed...and have been thinking about them constantly. How strange it would be to leave the hospital that last time, without your child. What would it be like to go home and do the normal things you have to do, like eat dinner and go to sleep, but know that your life has changed forever? And how difficult would it be to deal with your own grief, but also to help your children who are grieving over a lost sibling? My heart goes out to the entire family.
Drew-Why is Faith still in the hospital?
Me-Well (getting choked up)...she's not in the hospital anymore. She's in heaven now.
Drew-(starting to cry) Why is she in heaven? Was she very old?
Me-No honey, she was very very sick. So Jesus took her to heaven to be with him.
Drew-But I wanted her to come to my house.
Me-I know. But she's not sick in heaven. She's happy and playing.
Drew-Why does Jesus take kids to heaven?
I don't know how much he understands about death and heaven, but I do know that he was sad that Faith was gone. I told him that we are sad because we will miss her, but she is happy in heaven. I was dreading having this conversation ever, but I think it went pretty well considering.
Now if only someone could say something to me that would make me feel better.