Our family's story of living with a CHD and choosing to live life to the fullest
Friday, July 2, 2010
This week, Drew attended First Covenant’s Sports Camp for the first time. It is a summer program for kids ages 6-12 and they offer programs in soccer, volleyball or basketball. We thought Drew would enjoy basketball, since he played his first season of basketball this year. Some of his best buddies signed up to play too, including Jacob, Eben and Tommy. They had fun playing each night and it gave Dan and me a chance to spend some time alone with Ava. On the last night of camp they had a tournament and the kids got to play a game before getting their medals at the awards ceremony. A fun week for all!
Drew during the game
Taking a shot
Drew with his medal
Tommy, Brandon (a new friend), Jacob, Drew and Eben
The girls wanted to have a picture taken together too!
Drew is a happy 7-year-old who loves his family, his friends, and everything Star Wars! He was born with a CHD, specifically interrupted aortic arch, VSD, hypoplastic aortic root and DiGeorge Syndrome. He has had three open-heart surgeries, the most recent was in May 2008 at Stanford. He is so strong and brave and we are very proud of him.
Ava is a spirited 5-year-old girl. She loves her family, friends and climbing, jumping and dancing. She brings us a lot of joy and a lot of drama! She is heart healthy. We love to see all the adventures she has!
This is how Drew's heart is now!
One and a half ventricle repair 1) VSD closed with a patch 2) Conduit from right ventricle to pulmonary artery . Drew still has the SVC connected to the PA in the upper left. Thank you Dr. Hanley and Dr. Mainwaring!
In the dark times, the eye begins to see. The dark times in life are not our enemy. Dark times empty the world of things that would otherwise distract us from seeing the important things. Enter the darkness with confidence.