Saturday morning I called the pediatrician on-call to find out how Drew's calcium labs looked. He said they were in normal range so yesterday was the first day in over 4 years that Drew didn't take his calcium! One more blood test next Friday and then we can officially kiss the calcium goodbye! We decided to make an impromptu trip up to Daffodil Hill to see the beautiful daffodils. Unfortunately the weather wasn't cooperating and it was cold and foggy. The flowers still looked pretty though and we got some cute pictures. Poor Drew was freezing and Dan had to keep him wrapped up in his jacket. We ended up stopping for lunch at a tiny little Mexican restaurant in Jackson that wasn't really prepared for our party of 7 adults and 6 children. It took about two hours to finish our meal and then we made the hour drive back down to Sac. And then we remembered that we need to pick up the dang medication at the pharmacy! So we went on the way home and didn't get home until 5:00. We had made plans to have friends over for dinner at 5:30 so we rushed to get the house cleaned up before they arrived. We ended up having enough time to clean up before they got here and then we had a really fun time with them, although it was a little hectic with the five kids running/crawling around. After dinner I was exhausted!
Daffodil Hill in the fog
Our family with the flowers
Dan trying to keep Drew warm
This is five days worth of sildenafil. We calculated it out and it's $1 per ml and he takes 12 each day.This morning we got everyone ready for church and out the door by 10 am. Dan and I ended up volunteering to work in children's church so we didn't hear the sermon. But it was fun to be with the preschoolers. They are all getting so big! Then Drew had a birthday party for one of his preschool friends at 1. And I had to leave around 2 for a birthday party for one of my friends. I ended up getting home a little after five and then we went to Target for some essentials and then to the bike store to try and replace some of our equipment, but it was closed! So we headed home, had leftovers for dinner and Dan ordered our biking stuff over the phone. Phew. Maybe next week will be relaxing.
Drew at Elizabeth's birthday party
7 comments:
Busy weekend! Wow. I enjoyed the pics...how pretty! And I'm so happy to hear you are able to drop the calcium..woohoo!
A group of us is going to Daffodil Hill tomorrow, thanks for the preview.
Thanks for your note on my blog.
Such a busy weekend! Thanks for volunteering at church--the kids are lucky to have you! I am glad that the calcium levels are looking good. Yay Drew!! I love the picture of the medicine! You are too funny!
Yay for normal calcium levels! Glad you survived your weekend. Hopefully your week is a little more calm for you guys!
Amy
I hope you know that there's NO way your kids could get any cuter!!!
Love the flowers...how adventurous you guys are...my kids would have looked at me like "now what??"...where are the amusement rides and games!
Yeah for the calcium...we've been lucky that's been one drug not on our list.
What is that expensive drug used for?? GOSH..guard that one with your life!!!
Hope you get to hold the couch down a little this week...and just relax!
Kathy
hi my name is tina and my daughter victoria also has digeorge syndrome she just turned 5 she has had 3 open heart surgeries before she was 2 we like to say she has a special heart just like drew has one they are very special kids best of luck to your family
The pictures are beautiful...you have a gorgeous family! Sorry you did not have a relaxing weekend...I am worn out just reading this. I am glad that the calcium gets to get dropped and that is one more med to cross off the list. I am hoping you at least get a bit of a relaxing week *yea right*
Heart Hugs,
Samantha
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